Fournier et al reported the ROADS (Rasch Overall ALS Disability Score) for evaluating disability in a patient with amyotrophic lateral sclerosis. The authors are from Emory University, Duke University, University of Pennsylvania, the Lahey Clinic and the Atlanta Veterans Administration Medical Center.
Patient selection: amyotrophic lateral sclerosis (ROADS)
Tasks:
(1) nod yes or no
(2) ride in a care
(3) eat soup
(4) drink a milkshake or smoothie
(5) sit on a toilet
(6) swallow pills
(7) blow out a candle
(8) eat dry food
(9) speak on the phone
(10) drink out of a glass
(11) eat a large meal
(12) sign name on paper
(13) get into bed
(14) roll over in bed
(15) take a shower
(16) use a knife and fork
(17) walk around your home
(18) move a chair
(19) speak in a loud room
(20) speak for hours
(21) clip nails
(22) walk up 1 flight of stairs
(23) walk up a hill
(24) climb a stepstool
(25) get up from the floor
(26) carry an object going down stairs
(27) stand for hours
(28) get a heavy object off a high shelf
Response |
Points |
normal |
2 |
able to perform with difficulty |
1 |
unable to perform |
0 |
total score =
= SUM(points for all 28 tasks)
Interpretation:
• minimum score: 0
• maximum score: 56
The raw score is transformed to a normed whole number score:
Raw Score |
Normed Whole Number |
0 |
0 |
1 |
14 |
2 |
23 |
3 |
29 |
4 |
33 |
5 |
36 |
6 |
39 |
7 |
41 |
8 |
44 |
9 |
46 |
10 |
48 |
11 |
49 |
12 |
51 |
13 |
53 |
14 |
54 |
15 |
56 |
16 |
57 |
17 |
59 |
18 |
60 |
19 |
62 |
20 |
63 |
21 |
64 |
22 |
66 |
23 |
67 |
24 |
68 |
25 |
70 |
26 |
71 |
27 |
72 |
28 |
73 |
29 |
75 |
30 |
76 |
31 |
77 |
32 |
79 |
33 |
80 |
34 |
81 |
35 |
82 |
36 |
84 |
37 |
85 |
38 |
86 |
39 |
88 |
40 |
89 |
41 |
91 |
42 |
92 |
43 |
94 |
44 |
95 |
45 |
97 |
46 |
99 |
47 |
101 |
48 |
103 |
49 |
105 |
50 |
107 |
51 |
110 |
52 |
113 |
53 |
117 |
54 |
123 |
55 |
132 |
56 |
146 |
Specialty: Sports Medicine & Rehabilitation, Neurology