Alrubaiy et al report the PBC-10 instrument for evaluating the quality of life (QOL) for a patient with primary biliary cirrhosis (primary biliary cholangitis). The authors are from St. Mark's Hospital London, Swansea University, University of Cambridge and Newcastle University.
Patient selection: primary biliary cirrhosis
Time frame: past 4 weeks
Items:
(1) embarrassed because of itching
(2) feel bloated after eating or drinking a small amount
(3) mouth very dry
(4) fatigue interferes with daily routine
(5) need to force self to do things
(6) need a day to recover if busy one day
(7) difficulty concentrating
(8) feel guilty because unable to do what able to do before
(9) social life has almost stopped
(10) quality of life reduced
|
Response
|
Points
|
|
does not apply
|
0
|
|
never
|
1
|
|
rarely
|
2
|
|
occasionally
|
3
|
|
frequently
|
4
|
|
always
|
5
|
total score =
= SUM(points for all of the parameters)
number of applicable items =
= 10 - (number that do not apply)
average score =
= (total score) / (number of applicable items)
Interpretation:
• minimum score: 0
• minimum score if all questions apply: 10
• maximum score: 50
• A change of 4 points in the score is considered significant.
