Cavallaro et al reported a scoring system for bowel dysfunction after ileoanal pouch reconstruction. The system scores symptoms and consequences separately. The authors are from the Patient-Reported Outcomes after Pouch Surgery (PROPS) Scientific Committee.
Patient selection: status post ileoanal pouch anal anastomosis (IPAA), most often performed for ulcerative colitis.
Consequences:
(1) need to plan activities
(2) diet change
(3) alter sleep habits
(4) modify behavior
(5) adjust job
(6) mental impact
(7) need for pads
(8) medication to decrease frequency
Parameter
Finding
Points
need to plan activities
never
0
less than once per week
3
once per week or more
8
diet change
never
0
less than once per week
5
once per week or more
8
alter sleep habits
never
0
less than once per week
5
once per week or more
7
modify behavior
never
0
less than once per week
5
once per week or more
7
adjust job
never
0
less than once per week
1
once per week or more
6
mental impact
never
0
less than once per week
4
once per week or more
10
need for pads
no
0
yes
3
medications
no
0
yes
3
subscore for consequences =
= SUM(points for all of the consequences)
total score =
= (subscore for symptoms) + (subscore for consequences)
Interpretation:
• minimum subscore: 0
• maximum subscore: 52
• minimum subscore: 0 (paper says 1)
• maximum subscore: 98 (paper says 145 but this requires inclusion of all possible responses for all of the questions rather than selecting one)
Total Score
Ileoanal Pouch Syndrome
Poor Quality of Life
0 to 15
none
2%
16 to 29
minor
8%
30 to 44
moderate
25%
45 to 60
severe
42%
> 60
extremely severe
71%
Performance:
• The area under the ROC curve was 0.83.
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