A patient with porphyria can have a poor quality of life (QOL) depending on the severity of the disease.

Factors that may affect the patient's quality of life:

(1) anxiety and depression

(2) posttraumatic stress disorder (PTSD) related to acute attacks

(3) other neuropsychiatric issues

(4) failure to secure or loss of employment

(5) disfigurement in sun-exposed skin, especially the face

(6) pain or discomfort (abdominal, other)

(7) disability (impaired mobility, problems with self-care)

(8) delay in diagnosis

(9) impact of comorbid conditions (liver disease, etc)

(10) social and family problems

(11) need to avoid factors that may precipitate an acute attack

To read more or access our algorithms and calculators, please log in or register.