Piram et al reported various activity measures to record daily by patients with an auto-inflammatory disease. One such diary entry if for patients with Tumor Necrosis Factor-1 Associated Periodic Syndrome (TRAPS). The authors are from multiple institutions in Europe, Turkey and the United States.
Patient selection: TRAPS
Parameters:
(1) body temperature in °C (for detection of fever)
(2) abdominal pain
(3) limb pain
(4) eye manifestations
(5) skin rash
(6) overall TRAPS symptoms
(7) pain relief medication
(8) mg of prednisone
Parameter
Finding
Points
body temperature
< 38°C
0
>= 38°C
1
abdominal pain
none
0
mild
1
moderate
2
severe
3
limb pain
none
0
mild
1
moderate
2
severe
3
eye manifestations
none
0
mild
1
moderate
2
severe
3
skin rash
none
0
mild
1
moderate
2
severe
3
overall TRAPS symptoms
none
0
mild
1
moderate
2
severe
3
pain relief taken
no
0
yes
1
total score for daily activity =
= SUM(points for the first 6 parameters)
Interpretation:
• minimum score: 0
• maximum score: 16
• The higher the score the greater the disease activity.
To read more or access our algorithms and calculators, please log in or register.
