Piram et al reported various activity measures to record daily by patients with an auto-inflammatory disease. One such diary entry if for patients with Familial Mediterranean Fever (FMF). The authors are from multiple institutions in Europe, Turkey and the United States.
Patient selection: familial Mediterranean fever
Parameters:
(1) maximum body temperature in °C (for detection of fever)
(2) abdominal pain
(3) arthralgias or myalgias
(4) swelling of the joints
(5) chest pain
(6) skin rash
(7) pain relief medication
Parameter
Finding
Points
body temperature
< 38°C
0
>= 38°C
1
abdominal pain
none
0
mild
1
moderate
2
severe
3
arthralgias or myalgias
none
0
mild
1
moderate
2
severe
3
swelling of the joints
none
0
mild
1
moderate
2
severe
3
chest pain
none
0
mild
1
moderate
2
severe
3
skin rash
none
0
mild
1
moderate
2
severe
3
pain relief taken
no
0
yes
1
total score for daily activity =
= SUM(points for the first 6 parameters)
Interpretation:
• minimum score: 0
• maximum score: 16
• The higher the score the greater the disease activity.
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