Weller et al reported a quality-of-life questionnaire for patients with angioedema. The authors are from Charite Universitatsmedezin Berlin, University Medical Center Mainz and University of Tubingen.
Patient selection: angioedema
Time frame: past 4 week
Items:
(1) work impairment
(2) physical activity impairment
(3) impairment of spare time activities
(4) impairment of social relations
(5) difficulty falling asleep
(6) waking up during night
(7) feeling tired during the day
(8) difficulty concentrating
(9) feeling downhearted
(10) feeling burdened by having the swelling
(11) fear of new or sudden swelling
(12) feat of increased frequency of swelling
(13) ashamed to visit public places
(14) embarrassed by the swellings
(15) fear of long-term drug effects
(16) general limitations in foods and eating
(17) limitations in the selection of food and beverages
|
Response
|
Points
|
|
never
|
0
|
|
rarely
|
1
|
|
sometimes
|
2
|
|
often
|
3
|
|
very often
|
4
|
Categories:
(1) functioning: items 1 to 4
(2) fatigue and mood: items 5 to 9
(3) fear or shame: items 10 to 15
(4) food and beverage limitations: items 16 and 17
total score score =
= SUM(points for all of the parameters)
Interpretation:
• minimum total score: 0
• maximum total score: 68
• The final score can be transformed to have a range from 0 to 100.
