Graffigna et al reported the 5-item Patient Health Engagement (PHE) Scale for measuring a patient's engagement. It can be used to tailor intervention and assess changes after an intervention. The authors are from Universita Cattolica del Sacro Cuore in Milan.
Patient selection: chronic condition
Development: The initial scale had 9 items. Three items (D, E, F) were removed because of ceiling effect. Item C was removed to improve reliability.
Item
When I think about my disease
Points
A
I feel in blackout.
1
I am in alarm.
2
I am aware.
3
I feel positive.
4
B
I feel dazed.
1
I am in trouble.
2
I am conscious.
3
I feel severe.
4
G
When I think about my illness I feel overwhelmed by emotions.
1
I feel anxxious every time a new symptom arises.
2
I got used to my illness condition.
3
Despite my illness I perceive coherence and continuity in my life.
4
H
I am very discouraged due to my illness.
1
I feel anxious when I try to manage my illness.
2
I feel I adjusted to my illness.
3
I am generally optimistic about my future and my health condition.
4
I
I feel totally oppressed by my illness.
1
I am upset when a new symptom arises.
2
I feel I have accepted my illness.
3
I can give sense to my life despite my illness condition.
4
Point assignment in practice is done using a 7-cell response grid, with statements placed above cells 1, 3, 5, and 7. Responses in cells 1 and 2 are assigned 1 point. Responses in cells 3 and 4 are assigned 2 points. Responses in cells 5 and 6 are assigned 3 points. Reponses in cell 7 is assigned 4 points.
total score =
= SUM(points for all 5 items)
Interpretation:
• minimum score: 5
• maximum score: 20
• The higher the score the better the patient's attitude.
• The higher the score the better the adherence with therapy.
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