Globe et al described a functional state measure for patients with hemophilia. This can help in initial evaluation of patients and for monitoring function over time. The authors participated in the Haemophilia Utilization Group Study and are fro the University of Southern California.
Measures:
(1) orthopaedic level (5 levels, 0-4 points)
(2) work and/or school participation (3 levels, 0-2 points)
(3) social interaction (3 levels, 0-2 points)
(4) overall well-being (3 levels, 0-2 points)
|
Measure |
Finding |
Points |
|
orthopaedic level |
bed-ridden |
0 |
|
|
wheelchair bound |
1 |
|
|
intermittently disabled |
2 |
|
|
minor limp, or occasional need for assistance |
3 |
|
|
able to ambulate normally |
4 |
|
work/school participation |
none (unable) |
0 |
|
|
absenteeism interferes with participation |
1 |
|
|
regular participation |
2 |
|
social interaction |
social isolation |
0 |
|
|
limited social interactions |
1 |
|
|
frequent social interactions |
2 |
|
overall well-being |
severe to extreme illness |
0 |
|
|
mild to moderate illness |
1 |
|
|
healthy |
2 |
total score =
= SUM(points for all 4 measures)
Interpretation:
• minimum score: 0
• maximum score: 10
• The higher the score the better the patient's functional status.
In addition, patients were graded on their level of self-care and ability to tend to the activities of daily living (ADL):
|
Self-Care Status |
Level |
|
independent in self-care |
1 |
|
some assistance required in ADL |
2 |
|
requires assistance in most ADL |
3 |
|
totally dependent |
4 |
Purpose: To evaluate the functional status of a patient with hemophilia using the Haemophilia Utilization Group Study (HUGS) Functional State Measure.
Specialty: Sports Medicine & Rehabilitation, Hematology Oncology
Objective: severity, prognosis, stage, disability and performance
ICD-10: D66, D67, D68,
