Description

Bleck used 4 measures of functional performance in patients with osteogenesis imperfecta. This can help monitor the natural progression of the disease and the response of the patient to therapeutic interventions. The author is from Children's Hospital at Stanford, California.


 

Parameters:

(1) independence

(2) activities of daily living (ADL) efficiency

(3) mobility efficiency

(4) ambulation efficiency

Parameter

Findings

Points

independence

none (unable to act independent even with human assistance)

0

 

requires human assistance to achieve anything in an activity (complete dependence)

1

 

needs some help occasionally (partial dependence)

2

 

independent of human help but requires assistive devices or special tools (independent with technical help)

3

 

completely independent in activity but not normal (timing, effort, external appearance)

4

 

normal activity (timing, effort, external appearance)

5

activities of daily living

none possible

0

 

essential personal needs met (self-feeding, toileting, dressing)

1

 

complete personal care (grooming, hygiene)

2

 

household activity possible (can cook, clean, keep house)

3

 

can participate in community activities (social, participate in organization, game playing)

4

mobility efficiency

none

0

 

severely limited (mobile but not functional enough to be used)

1

 

can move about immediate surroundings (housebound)

2

 

can travel in the community

3

 

can travel beyond the community

4

ambulation efficiency

no ambulation possible

0

 

can walk but not functional enough to be useful (severely limited; physical therapy walker)

1

 

can walk in the home (house bound)

2

 

can walk outside in the neighborhood (limited to 2-3 blocks)

3

 

can walk in the community

4

 

total score =

= SUM(points for all 4 parameters)

 

Interpretation:

• minimum total score: 0

• maximum total score: 17

• The higher the score the greater the normalcy in function.

• Each parameter can be monitored over time.

 


To read more or access our algorithms and calculators, please log in or register.